Wednesday, February 11, 2009

This New Lupus Blog

Welcome to this new blog, all about living with lupus. I have had lupus for eights years, and have also been diagnosed with interstitial cystitis and fibromyalgia. I know living with chronic illness can be difficult, and I am hoping that others will be able to benefit in some way from the posts on this blog. Over the next few days I will be adding more links and blogs, so if you want to suggest a lupus-related link, please do so in a comment. I hope that anyone who reads this blog will indeed feel free to comment. I may not respond immediately, depending upon how I'm feeling, but I will respond as soon as possible. Your participation can make this blog about something more than just me, and that's what I hope will happen here. If not, well, I'll just keep sharing my experiences so that people like me know that they are not alone in this.

Until the next post, remember to keep living your life, to love, and to laugh.

6 comments:

Gerry said...

Hi Christine;
Sorry to hear about your condition. I do applaud you for reaching out to others .... strength in numbers. I am a firefighter and fitness trainer and am continually looking for new health advancements. I stumbled upon one a couple of months ago that I believe would greatly benefit you. If you have any interest please feel free to contact me at gbish11@yahoo.ca .

Take Care
Gerry

Jenny said...

New lupus medication is being studied. Benlysta shows promise, read about it here: http://www.orderonlinedrugs.com/drug-news/2009/08/06/benlysta-hopes-to-change-lupus-treatment-forever/

Tina Hill said...

Hi Christine,
I applaud you for being willing to share your experiences with lupus with others. I believe there is power in people sharing their experiences with others. It helps us understand that we are not alone in our fight for health.
I would love if you checked our recently launched health-focused, patient-centered social site. Our goal is to connect people to others who share their medical condition. We currently have over 200 members on the site who have lupus. Would love if you shared your blog URL with our lupus community. The site is: http://www.facetofacehealth.com.
Thanks and I hope you are feeling great today!

kittyluv56 said...

Hi!
I recently was diagnosed with Lupus two days ago. I am only 16 and I am home schooled. The symptoms of this disease I now know I have were with me almost a year before I found out. My white blood cell count was dangerously low so I went for test this past week. This is how we finally came upon the answer. I play soccer. My fatigue caused me to almost miss half of this past seasons games. I was wondering how you deal with it and hope that you can inspire me to inspire others! God Bless and hope to here from you soon!

-Carol.

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SR said...

lupus is incredibly frustrating. i'm fighting it too. hugs and healing thoughts!

http://gradstudentwithlupus.blogspot.com/